Resource Link

https://odpc.ucsf.edu/sites/odpc.ucsf.edu/files/pdf_docs/Video%20Script%20for%20Parents%20and%20Supporters_0.pdf

Resource Description

Introduction: This document is a video script about Supported Health Care Decision-Making written for parents and supporters of people with disabilities. It was created by the Office of Developmental Primary Care at the University of California, San Francisco. The script explains how parents and caregivers can help people with disabilities make healthcare decisions while still letting them have some control over their choices.

Resource Summary

Content Summary: When you help someone with a disability get healthcare, you might face many problems. There might be building issues that make it hard to get around. Doctors might not know how to talk with your loved one or understand their needs. Right now, there are a few ways you can help the person you care for. You can get a Power of Attorney to make medical choices when they can't say what they want. You can also get a conservatorship or guardianship that gives you full power to decide certain things. But these legal options can be hard to get, cost a lot, and are tough to undo. They also don't let the person choose who helps them or how they get help. Many families are looking at a new option called Supported Health Care Decision-Making. This idea is based on the belief that people with disabilities should get the help they need while still having some say in their lives. It can be cheaper and easier than other options. When your loved one picks you as their trusted helper, you can see their medical info and help them in many ways. You can help them talk with doctors and follow treatment plans. New laws might make this easier with Supported Decision-Making Agreements. These would be forms that doctors would accept. Using these forms would be a choice, not a must. With your help, your loved one could name many trusted helpers. By helping them build a wider support team, you share the work of helping them make choices and follow health plans. This sets good limits between you and them. It helps them take a more active role in their care and learn to make choices with help from others. It makes sure they have support even when you can't help them. These agreements will have rules to keep the person safe. Doctors don't have to accept a choice if they think someone forced the person or didn't explain things well enough. A Health Passport is one way a new helper can learn about the person's health history and what they like. It can be given to doctors during visits or stays in the hospital. This paper, along with a Supported Decision-Making Agreement, can be part of the person's care plan. The script ends with information about where to find a video that explains more about Supported Health Care Decision-Making. It also tells readers where to find more details about planned laws and answers to common questions. The last part lists the names of the people who made the video and the actors who played roles in it.