Resource Link

https://movingtoadulthealthcare.org/

Resource Description

Introduction: The website "Moving to Adult Health Care" supports young people with intellectual and developmental disabilities as they transition from pediatric to adult health care. This process is called Health Care Transition (HCT). It helps youth aged 12 to 26 learn how to manage their own health and continue the care they need. The site is run by the Center for Transition to Adult Health Care for Youth with Disabilities. This organization works to make this change easier for young people, their families, and their care providers.

Resource Summary

Content Summary: The website offers many resources to help with transition. Young people can find guides to know what HCT means and how to manage their own health care. It tells them how to prepare for changes like new doctors. They can also learn about their legal rights and how to be self-advocates. This means speaking up for one’s self when making choices. The site has videos, worksheets, and tips that are easy to follow and designed to help young people feel confident during this change. For parents and caregivers, the website gives practical advice on how to support their child’s health care transition. There are checklists and timelines that help parents understand what steps need to be taken and when. This includes helping their child talk with doctors, handle medicine, and take charge of their own health care as they grow older. Health care providers can find resources to support their patients. The website offers toolkits, quick guides, and training programs. They teach providers how to make the transition smoother. Trainings cover topics like how to help youth with disabilities become more independent in managing their health. They cover how to ensure ongoing care when patients move to adult health services. Providers can access best-practice guidelines, which give them clear steps to follow during the transition process. The site also promotes youth leadership. Young people with disabilities can join leadership programs. These programs give them a chance to share their stories, learn skills, and advocate for better health care systems. There are more tools, trainings, and information for youth, families, and professionals. The website’s goal is to ensure that young people with disabilities receive quality care. It promotes learning how to take control of health in becoming an adult. The resources and programs on the site can make this process easier.